The Haunting Time Is Coming Near!

The Ghoullog - Mountaintop Haunt at Cranmore, North Conway, NH

Hollow Rabbit and Lies

It's like I'm stuck inside a shell. Like one of those chocolate rabbits you get for Easter... You take a bite and it crumbles into little shards below where your teeth bit into it. Some make it to your mouth, where intended... And little shards you try and catch with your hands as they fall. I don't feel like a chocolate rabbit. I feel like I'm empty.

I do mundane things.
I'm bored and not interested in many of my hobbies. I sit down, start to work, and quickly frustrated- it goes right back in the box or wherever I'm storing it. It sucks. I wish I had the creative energy I once did. In time- it will be back.

In a nutshell, the new medication my trusted and wonderful Dr. C put me on seems to be helping. Pain wise, I'm still having it, but not as pronounced. Today's a different story though- since it's raining... I woke up in knots, and just taking it as easy as I can. A day at a time.

I'm pretty upset, as I found out yesterday the "neurosurgeon" that I had consulted with, and only saw twice, wrote up a completely bogus report- which in turn has cost me my short term benefits. (don't worry, I plan to appeal this decision) It insinuates that I'm lying about my back problem, whining about an injury, mentally stable and coherent (even though I'm heavily medicated and sedated to battle the amount of pain I'm currently in), completely capable to carry out all my work duties (mind you, driving to work is a requirement.... I haven't been behind the wheel of my vehicle since April when my parents emergency-picked me up and whisked me home), walk around holding on to Mom and Dad for "emotional, not physical need", and that I have nothing wrong. Nothing wrong. Really? That's great in a way- because this doctor was a consultation only, another opinion to rule out any neurological problems I may have. So if it's not neurological, that's the good news... And I no longer need to consult with him. However- the company took his one "sound byte" of "nothing wrong" as the basis to deny my claim- even though this "doctor" was not the one treating me long term. Despite all the other numerous, documented and supporting evidence from my Dr. C that there is a severe problem with my back, and  the delayed diagnosis was tough because he literally couldn't touch me. Oh, did I also mention that M lied and said I "refused treatment"? Oh yes he did. He wanted an MRI of my head, and it couldn't be done because of my braces. He sat with me, face to face, and  asked how soon they were supposed to come off. I said about a year, and I would prefer to not remove them because it's painful, and also close to 1k to do. I candidly explained I don't have that kind of money sitting around, waiting for me to spend, and I'm also unable to work because of the medication, and needed to come home for proper care. He sat there, pondered for a moment, then said it was ok- there are other avenues we can take. However, in his report it was recorded that I denied his treatment and refused to do what he asked, so a diagnosis wasn't available. Seriously?!

Nothing wrong at all though? That's funny... Because my regular Dr. C is strongly disagreeing about that. I've since fired M's ass from treating me. I want nothing further to do with him, his office, or any associates of his. Among more lies, apparently I'm able to swim efficiently and without problems. Let me state for the record- I've been to the river a grand total of 2 times this summer. One, I waded into the water up to my waist, and lo and behold my leg once again gave out while I was standing there. However, since I was in water, I tipped over, floated and was able to regain my footing using my left foot- since I couldn't feel my right. I stayed there until I had feeling returned, and then went back to shore and dried off. The other time involved me floating in a raft for a short distance, pulled by my sister most of the time, and I was seated the entire time other than to get in and out of it. Now how did this doctor come to his conclusion that I was able to swim with wonderful mobility?? He saw the rash I had on my hands- asked about it. I said it was probably from a dead tree I accidentally touched when I fell while in the river for the first time- it was an allergic reaction I had to whatever slimy grossness was growing on said tree, and after about 3 days, it was gone.  I said nothing of swimming. This "doctor" is amazing folks- he deduced that because I waddled out into the water and touched a tree- I'm ready for the Olympic swim team this year. "diagnosis". In fact, M gave me no real diagnosis at all. He medicated me. Content to keep me on a high and dangerous dose of epileptic medication- keep in mind I do not have any problems with seizures. Never have. So

The dirty truth. Any distance further than the kitchen or bathroom, I take my cane. Yes folks- I have a cane. I finally broke down and bought one because my falling episodes were still quite frequent. I balked at the idea, refused, then finally decided it was safer for me to have assistance walking since a) Dad, Mom and my little sister wouldn't be able to walk me everywhere, b) not using a sword cane because it can't be brought into the hospital (even that one I didn't want to use), c) found that having it to lean on helps me move a little faster, and d) catches me if my leg gives out and I start to fall. I'm able to recover by shifting my weight to my left foot, and using the cane to keep me upright until I regain feeling. I don't fall all the way down and re-injure myself. I've caught myself in places where if I had fallen completely to the ground, there would have been a good chance my head would have hit something- and folks, I really don't want a concussion or any other head injury. I sucked up my pride, and I walk with a cane. I hate having anything that could give away the fact that I have chronic asthma... Now all of a sudden it's "hip" and "cool" to be walking around with assistance- so I bought it for fun?! Get real. It's needed. The walker, however, I vowed to destroy before venturing into public with that blasted thing. Cane was the compromise. Now when I'm old and decrepit, and need assistance walking around... Then, and only then, will I take up the walker. And I want a blinged-out basket on the front to store things in... Like Fig Newtons, cell phone, tissues, and hand sanitizer. Maybe even a cookie or two, but always in there will be a bar of chocolate. No ifs, ands or buts about it.

I'm patiently waiting. I'm playing by the rules, doing everything I can in order to fix myself up and be ok again. I'm quickly coming up on 6 months of being in this pain. I just want it gone. I want the spasm gone. I don't want to need these medications, the cane, being around someone 24/7 in case I fall. (which I'll happily report since being on the new medication, is happening less frequently now... though yesterday morning I fell coming down our stairs- I was on the last few and managed to pitch backwards and catch myself on my hands. yes, it hurt) I've submitted the paperwork, gone to the Dr's, and a total quack, and finally when the light at the end of the tunnel nears- I get slapped with this shock. It remains the same... A day at a time, and I'll get there. Keep on moving- I'll get there. I just need to remind myself sometimes. Well, ok, often. But I'm not alone. I have all of you- my family, my friends.


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