The Haunting Time Is Coming Near!

The Ghoullog - Mountaintop Haunt at Cranmore, North Conway, NH

Can't Touch, Disgusted

If I could just crawl into a hole, and hibernate for a few months, then come out completely healed... I would do it in a heartbeat. The travel we had this past weekend was rough- spending at least 13 hours total riding while we had family things to deal with. It was a surprise birthday party for my Dad's cousin, and it was pretty great to see relatives I haven't seen for a long time... And to be reintroduced to those whom I didn't remember- yes, it's been that long. All in all, it was wonderful to see everyone again. The food was great, the company was so much fun- and we need to do it more often.

On to the issues at hand, however, and where I go from here regarding my back injury. I had another appointment earlier this morning with my Doctor to discuss paperwork and where we go from here concerning my denied disability benefits. Needless to say- he was disgusted with what we discussed and had shown him. Instead of having Dr. C being the one they collected information from, they instead latched on to M as if he were the "be-all end-all" doctor in my bubble for a diagnosis. Countless times I had to tell the company handling my claim that M wasn't my doctor, was not treating me, and was simply a consultant to rule out any neurological problems. Well- he not only ruled it out... He made some comments that were completely off base, and others that were flat out lies- but which the claim handlers jumped on board that and said "See! Nothing is wrong!"......

Forgotten amongst all of this is the fact that M was only consulted with and seen for neurological purposes- problems that may stem inside this noggin of mine. There are none, which I'm happy to report. However- he offered many of his personal observations and opinions as fact- which doctors are not supposed to do. Based upon this bogus information, even though it's strictly against policy of the claims department for accepting opinions as fact, they did indeed deny my claim. They're banking on me giving up, getting so frustrated at the run around, get more information, need one more paper, gotta have this too- will make me throw up my hands, scream in frustration and say "I give up.". Well, folks.... I do not feel well. It's difficult for me to sit comfortably, walk well, sleep soundly, and look healthy. But I will not give up. It's not in me, the fabric of the person I've been made into, to simply give up. No.

I fight- for what I need, for what I want. There are few exceptions I simply drop it and walk away- but those are more complicated, and not part of this affliction. This back problem will not last forever. Giving up is not an option I recognize. So I will file the papers, I'll complete the appeal. I'll continue to get treatment from my Doctor C who knows this condition- and has no doubt that it's severe. He couldn't touch me today- the spasm is back so bad, I was tightening up involuntarily as he was trying to feel where my bones were. Of course, they out of place. But with the spasm still holding- he can't do much. He couldn't move me to get them back into place- so another shot in my bum, anti-inflammatory and steroid to bring down swelling, next week we'll try again. Meanwhile I'm back home, in my recliner, dopey because of the Valium, and uncomfortable because I can feel where my bones are out and it hurts. These dang ligaments need to heal.

Savella is the new medication I've been on for about 3 weeks. It's significantly helped me with the pain, better than the overdosed Neurontin thanks to M. I'm not as foggy and sluggish, though I'm still finding myself antisocial. My new goal over the next few days is to get back in touch with everyone I've not been talking to. According to Dr C, we're finally making progress- even though he couldn't fix me today. It's slow- and it's painful- but it's forward moving. He was disgusted by some of the comments of the report from M, and in order to get the claim re-evaluated for me, he's going to write a very detailed letter on my behalf. I'm also doing one of my own, of course with help from my parents because I'm not exactly Little Miss Understandable lately... I can type these mundane words out, since it's fairly simple... But to be detailed, pick apart a report, and ask questions that need to be answered with specifics... I'm not up to task to do that alone yet. My mind just is boggled trying to juggle what needs to get done. Together, it will be done though.

I feel bad for losing contact with so many people- but chronic, debilitating pain is no walk in the park. You may think it's fun to be able to sit home all day, with nothing to do but look out a window, poke around online, play with pets. It's boring. It's hermity. I thought for the longest time I just wanted to be left alone to my own devices- I don't need anyone but me. How wrong I was. I miss social interactions, but considering the fact that I still can't drive kind of puts a damper on things for me. I have to rely on other people either picking me up, or taking along one of my parents with me for a short jaunt. I'm not a fan of potholes or bumps in the road- it kinda hurts. So... My butt stays parked in the recliner, usually a blanket, a cup of tea and one of water, and this computer on my lap. I don't have all the time in the world to be calling people, talking. It just takes so much energy out of me- nevermind actually going out. It sucks. The worst part? I catnap on and off most of the day. Now this new medication keeps me a bit more lucid- but still... The other ones I'm on still make me sleepy. I forget things. More like... Everything. Unless I write it down, chances are I'll forget. So even if I do say "Hey, I need to call so-and-so later...", typically I'll fall asleep for a while, and wake up and do something else. By the time I go to bed, I remember that I forgot to call... And forget the next day too. It's awful. I need a sticky pad surgically attached to my arm or something. For now, I need to sign off and take a nap... The Valium really takes all the energy out of me I have. I'll be back later.


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